Conocer el impacto emocional de los padres ante la notificación del ingreso de su hijo en una unidad de cuidados paliativos pediátricos

Cristina Monteverde Ballart; Lluís  Malla Abelló; Maite Pérez Inés

Vol. 4 No. 1 (2019), Artículos

Vol. 4 No. 1 (2019)

Parenteral emocional impact on child palliative care admission

Artículos

Published 2023-10-17

Cristina Monteverde Ballart
Lluís Malla Abelló
Maite Pérez Inés

Cristina Monteverde Ballart

Lluís Malla Abelló

Maite Pérez Inés

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Keywords

cuidados paliativos pediátricos, vivencias de padres, comunicación de malas noticias, sufrimiento, niño enfermo grave Pediatrics terminal Care, Advance Care Planning, Pediatric Ethics, Bereavement parental attitudes, communications skills, serious illness communication

How to Cite

Monteverde Ballart, C., Malla Abelló, L., & Pérez Inés, M. (2023). Parenteral emocional impact on child palliative care admission. HAEL. HEALTH, AGING & END OF LIFE, 4(1), 73–95. Retrieved from https://reunido.uniovi.es/index.php/hael/article/view/20388

Abstract

Objective: This study intends to know the emotional impact and explore the experience experienced by parents when notified of their child’s admission to a PPCU. Also, detect which strategies used by professionals helped them and which ones did not.
Method: Qualitative study of interpretative phenomenological design. 10 pro-genitors of children admitted to the PPCU of Sant Joan de Déu Hospital, Barce-lona, aged: 41-52 years old.
Results: 4 main themes emerged: impact; lack of information; space and time to integrate the news; knowledge of the team / therapeutic alliances, the impact being the most recurrent.
Conclusions: Having information about PPCU, the adequate space and time to assimilate the news, establish a relationship of trust and the possibility of an early intervention were shown as key elements to reduce the emotional impact. This study could become a valid tool to create training programs for professionals involved in the process and improve the quality of care in the future.

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