Factors that influence living the end of life at home or in the hospital
PDF (Español (España))

Keywords

domicilio, hospital, cuidados paliativos, final de vida, muerte Home, Hospital, Palliative care, End of life, Death

How to Cite

Heredia Cuenca, M. (2023). Factors that influence living the end of life at home or in the hospital. HAEL. HEALTH, AGING & END OF LIFE, 6(1), 71–98. Retrieved from https://reunido.uniovi.es/index.php/hael/article/view/20430

Abstract

Living the end of a life is a painful, yet unavoidable process that all humans must endure. How to live through it, at home or in a hospital, should be a personal decision. Nevertheless, the will of the patient cannot always be accomplished or expressed explicitly. Death entails something beyond a biological phenomenon, it also carries a social and cultural significance that has changed throughout history. Because of that, nowadays we do not experience the end of a life the same way our ancestors did. Our scientific, technologic, and social innovations have changed the location of death from the residence to a hospital, thus transferring the responsibility of taking care of the patient from their family to a professional and institutionalized hospital. Although data suggest that the place of preference to live our last moments is their own residence, the reality is that a majority dies in a hospital. The aim of this project is to create a bibliographic revision about the factors that are influential in someone’s preference of their location of death. The results of the bibliography conclude that these factors are diverse: for instance, the type of disease the patient is suffering makes spending the last moments of life at home easier. Family relationships, economic and educational status are also influential in this decision, as well as the possibility of access to palliative care from the residence.

PDF (Español (España))

References

Astudillo, W. y Mendiunueta, C. (2005). ¿Dónde atender al enfermo en fase terminal: en casa o en el hospital?. Consultado el 16 de noviembre de 2021. Disponible en: https://paliativossinfronteras.org/wp-content/uploads/

-Donde-atender-al-enfermo-en-casa-o-en-el-hospital-Astudillo-Mendinueta.pdf Ley 16/2003, de 28 de Mayo, de cohesión y calidad del Sistema Nacional de Salud (2003). Boletín Oficial del Estado, 29/05/2003. Disponible en: https://www.boe.es/eli/es/l/2003/05/28/16

Chen, M. C., Kao, C. W., Chiu, Y. L., Lin, T. Y., Tsai, Y. T., Jian, Y. T. Z., Tzeng, Y. M., Lin, F. G., Hwang, S. L., Li, S. R. y Kao, S. (2017). Effects of home-based long-term care services on caregiver health according to age. Health and Quality of Life Outcomes, 15(1). https://doi.org/10.1186/S12955-017-0786-6

Cohen, J., Houttekier, D., Onwuteaka-Philipsen, B., Miccinesi, G., Addington-Hall, J., Kaasa, S., Bilsen, J. y Deliens, L. (2010). Which patients with cancer die at home? A study of six European countries using death certificate data. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology, 28(13), 2267–2273. https://doi.org/10.1200/JCO.2009.23.2850

Danallara, O., Gastelum, B., Verónica Valadez Sánchez, M., Asela, M., Ríos Ramírez, A., Yazmín, J., Soriano, R., Barajas, H., Resumen, M. J. y Medina, H. B. (2013). Preferencias por el lugar para el final de la vida de los pacientes con cáncer y cuidado paliativo en el Hospital Regional de Alta Especialidad Bajío. 6, 20–26. Retrieved November 24, 2021, from www.medigraphic.org.mx

De Boer, D., Hofstede, J. M., De Veer, A. J. E., Raijmakers, N. J. H. y Francke, A. L. (2017). Relatives’ perceived quality of palliative care: Comparisons between care settings in which patients die. BMC Palliative Care, 16(1), 41. https://doi.org/10.1186/s12904-017-0224-x

De Roo, M. L., Miccinesi, G., Onwuteaka-Philipsen, B. D., Van Den Noortgate, N., Van Den Block, L., Bonacchi, A., Donker, G. A., Lozano Alonso, J. E., Moreels, S., Deliens, L. y Francke, A. L. (2014). Actual and preferred place of death of home-dwelling patients in four European countries: Making sense of quality indicators. PLoS ONE, 9(4). https://doi.org/10.1371/journal.pone.0093762

Del Río, I. y Palma, A. (2007). Cuidados paliativos: historia y desarrollo. Boletín Escuela de Medicina, UC, Pontificia Universidad Católica de Chile, 32(1), 16–22.

Escobar Pinzón, L. C., Weber, M., Claus, M., Fischbeck, S., Unrath, M., Martini, T. y Münster, E. (2011). Factors influencing place of death in Germany. Journal of Pain and Symptom Management, 41(5), 893–903. https://doi.org/10.1016/J.JPAINSYMMAN.2010.07.016

Espinosa, J., Gómez-Batiste, X., Picaza, J. M. y Limn, E. (2010). Equipos de soporte domiciliario de cuidados paliativos en España. Medicina Clínica, 135(10), 470–475. https://doi.org/10.1016/j.medcli.2010.06.004

Fornells, H. A. (2000). Cuidados paliativos en el domicilio. Acta Bioethica, 6(1), 63-75. https://doi.org/10.4067/s1726-569x2000000100005 Generalitat de Catalunya (2014). Atenció pal·liativa al malalt terminal – Institut d’Assistència Sanitària. Disponible en: http://www.ias.cat/ca/contingut/primaria/175

Generalitat de Catalunya (2014). Assistència especialitzada al domicili. Decisions compartides. Disponible en: http://decisionscompartides.gencat.cat/ca/decidir-sobre/atencio_final_vida/FAQ_afv/

Gomes, B., Pinheiro, M. J., Lopes, S., de Brito, M., Sarmento, V. P., Lopes Ferreira, P. y Barros, H. (2018). Risk factors for hospital death in conditions needing palliative care: Nationwide population-based death certificate study. Palliative Medicine, 32(4), 891–901. https://doi.org/10.1177/0269216317743961

Hamano, J., Yamaguch i, T., Maeda, I., Suga, A., Hisanaga, T., Ishihara, T., Iwashita, T., Kaneishi, K., Kawago e, S., Kuriyama, T., Maeda, T., Mori, I., Nakajima, N., Nishi, T., Sakurai, H., Shimo yama, S., Shinjo, T., Shirayama, H., Yamada, T. y Morita, T. (2016). Multicenter cohort study on the survival time of cancer patients dying at home or in a hospital: Does place matter? Cancer, 122(9), 1453–1460. https://doi.org/10.1002/CNCR.29844

Higginson, I. J., Sarmento, V. P., Calanzani, N., Benalia, H. y Gomes, B. (2013). Dying at home - Is it better: A narrative appraisal of the state of the science. In: Palliative Medicine (Vol. 27, Issue 10, pp. 918–924). SAGE PublicationsSage UK: London, England. https://doi.org/10.1177/0269216313487940

Hoare, S., Kelly, M. P. y Barclay, S. (2019). Home care and end-of-life hospital admissions: a retrospective interview study in English primary and secondary care. The British Journal of General Practice, 69(685), e561. https://doi.org/10.3399/BJGP19X704561

Ito, E. y Tadaka, E. (2017). Quality of life among the family caregivers of patients with terminal cancer at home in Japan. Japan Journal of Nursing Science (JJNS), 14(4), 341–352. https://doi.org/10.1111/JJNS.12164

Kinoshita, H., Maeda, I., Morita, T., Miyashita, M., Yamagishi, A., Shirahige, Y., Takebayashi, T., Yamaguch i, T., Igarashi, A. y Eguch i, K. (2015). Place of death and the differences in patient quality of death and dying and caregiver burden. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology, 33(4), 357–363. https://doi.org/10.1200/JCO.2014.55.7355

Lima-Rodríguez, J. S., Asensio-Pérez, M. de los R., Palomo-Lara, J. C., Ramírez-López, E. B. y Lima-Serrano, M. (2018). [Reasons for deciding to die in hospital or at home. The vision of professionals]. Gaceta Sanitaria, 32(4), 362–368. https://doi.org/10.1016/J.GACETA.2018.04.005

Llauradó Sanz, G. (2014). Cuidados paliativos, la perspectiva de la muerte como parte del proceso de vida. Ene, 8(1) https://doi.org/10.4321/s1988-348x2014000100006

López-Valcárcel, B. G., Pinilla, J. y Barber, P. (2019). Dying at home for terminal cancer patients: differences by level of education and municipality of residence in Spain. Gaceta Sanitaria, 33(6), 568–574. https://doi.org/10.1016/J.GACETA.2018.06.011

Martínez Ríos, I., López Alonso, S. R., Martín Caravante, S., Morales Infante, L., Soriano Ruiz, S. I. y Martínez García, A. I. (2018). Prevalence and typology of patients susceptible of palliative care deceased at home. Anales del Sistema Sanitario de Navarra, 41(3), 321–328. https://doi.org/10.23938/ASSN.0314

Moreira de Souza, R. y Turrini, R. N. T. (2011). (2011). Paciente oncológico terminal: sobrecarga del cuidador. Enfermería Global, 10(22). https://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1695-61412011000200013&lng=es&nrm=iso&tlng=es

Novellas-Aguirre, Pajuelo-Valsera (2020). Cuidados paliativos. La familia de la persona enferma. Retrieved November 24, 2021, from https://www.secpal. com/CUIDADOS-PALIATIVOS-LA-FAMILIA-DE-LA-PERSONAENFERMA

Organización Mundial de la Salud (2020). Cuidados Paliativos: datos y cifras. Cuidados paliativos [citado 20 de diciembre de 2020]. Disponible en: https://www.who.int/es/news-room/fact-sheets/detail/palliative-care

Pradilla, H. C., Correa Ospina, O. L. y Alonso-Babarro, A. (2011). Preference for Place of Death and Related Factors of the Elderly in the Mediterranean Isle of Ibiza. Colombian Journal of Anestesiology, 39(2), 174–188. https://doi.org/10.5554/RCA.V39I2.90

Rodrigues Gomes, A. M. (2010). El cuidador y el enfermo en el final de la vida -familia y/o persona significativa. Enfermería Global, 18. https://doi.org/10.4321/S1695-61412010000100022

Ministerio de Sanidad y Política Social (n.d.). Unidad de cuidados paliativos Estándares y recomendaciones [citado 20 de diciembre de 2020]. Disponible en: UCP (mscbs.gob.es).

Información y estadísticas sanitarias. Ministerio de Sanidad (2017) [citado 20 de diciembre de 2020]. Patrones de Mortalidad en España. Disponible en: https://www.mscbs.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/mortalidad/docs/Patrones_Mortalidad_2017.pdf

Sierra Leguia, L. et al. (2019). Experiencia del Cuidador familiar con los cuidados paliativos y al final de la vida. Index de Enfermería, 28 (1-2).

Sociedad Española de Cuidados Paliativos (SECPAL) (2014). Algunos precedentes históricos. Retrieved December 20, 2020, from https://www.secpal.com/secpal_historia-de-los-cuidados-paliativos_2-algunos-precedenteshistoricos

Sociedad Española de Cuidados Paliativos (SECPAL) (2014). Historia de los Cuidados Paliativos. Retrieved December 20, 2020, from https://www.secpal.com/secpal_historia-de-los-cuidados-paliativos-1

Sociedad Española de Cuidados Paliativos (SECPAL) (2013). Competencias enfermeras en Cuidados Paliativos. http://www.secpal.com/%5CDocumentos%5CBlog%5CMONOGRAFIA 3.pdf

Tan, W. S., Bajpai, R., Low, C. K., Ho, A. H. Y., Wu, H. Y. y Car, J. (2019). Individual, clinical and system factors associated with the place of death: A linked national database study. PloS One, 14(4). https://doi.org/10.1371/JOURNAL.PONE.0215566

World Health Organization (WHO) (2020). Palliative Care. Retrieved December 22, 2020, from: https://www.who.int/health-topics/palliative-care

Downloads

Download data is not yet available.